Tuesday, August 21, 2012

Sneak Peek #7

How you doing?

It's a question that is asked thousands, if not millions, of times each day. 

It's a question that is used as more of greeting than an inquisition. 

It's a question that has very little meaning.

It's a question that even your doctor asks.

It's a question that no one don't really expects an answer to.

What if, just once, you gave a truthful answer.

Check back on September 10, 2012 to discover the truth.

Wednesday, August 1, 2012

#6 - Chiari Comforts

Comfort is a word that most people take for granted.  We, Chiarians, know exactly how lucky the 'healthy' population is to be able to find comfort when its time to relax.  Unfortunately, our plethora of symptoms sometimes makes comfort elusive for us.  The thought of laying down in a calm, quiet space with no pain, no twitches, no visual oddities, no pounding, no pulsing, no jerks, etc. sounds like a dream to most Chiarians.  And, oh, the fun of hearing things that go on within your own body.  With so many symptoms plaguing us, finding recuperative rest is difficult. NFRA (National Fibromyalgia Research Association) has an excellent chart comparing fibromyalgia and chronic fatigue syndrome with Arnold Chiari Malformation.  Most Chiarian experience some symptoms on a continual basis; leaving no time for complete relaxation.  Finding complete comfort can almost become a chore for us.  So we would like to offer some solutions that we have found helpful in finding comfort.  We welcome your suggestions, as well.

Heather gives us a great list of her favorite helpers on her post Getting Through Symptoms.

Adrianne  shares her comforts in her blog post Chiari Comforts.

Kyle reminds us that sometimes its better to focus on the the fun things in his post Chiari Comforts.

April  shares her treatments with us on her post.

Shalunya gives us her thoughts for comfort at Chiari Comforts.