Sunday, February 19, 2012

Rare Disease Day

Please join us for the kick off of the Chiari Carnival on February 29, 2012, Rare Disease Day. Since Arnold Chiari Malformation is a rare disease, we could think of no better day to kick off our carnival. For more information please visit Rare Disease Day.  

You might be wondering what a blog carnival is and what is all the fuss about. Well, join us February 29, 2012 to find out.  If you or someone you love has been affected by Chiari or any other rare disease this carnival is for you.  Each month we will discuss new suggestions for living well with a challenging disease. Come back and join us for the first Chiari Carnival! 


  1. I've shared this on facebook! Now I'm off to write my post for tomorrow:)

  2. what a great idea Alicia! Awesome job!