Thursday, April 26, 2012

#3 - When It Rains, It Pours.

The rain began when life gave us these symptoms, this condition that we deal with.  Chiari rarely comes alone, so the additional raindrops come from a whole host of additional conditions.  So we Chiarians learn to become prepared.  We take great efforts in learning about the protective gear that modern medicine can offer us.  Medical procedures, medication and various therapies can become our raincoat, umbrella and galoshes helping us weather the storm that we have come to live in. 

Sometimes, though, in the midst of the storm life deals us more challenges.  Inevitably, we will come across people that will continue to add to our difficulties.  They will open the floodgates and begin pouring their complications upon us.  These people will be doctors, nurses, friends, family, teachers, bosses, coworkers and even strangers.  Often, they will be well meaning.  Such as a friend that asks, "You had surgery, so you're cured right?" But there can be times when it's downright frustrating when it's a member of the medical community.  We spend enough of our time explaining our rare condition but when we are given complete  and utter nonsense in return it can leave us feeling frustrated and alone.  This month we will tackle these difficult people (figuratively, not literally) and offer solutions on how to handle these charmers.

Carolyn reminds us when all else fails, teach people about Chiari and its symptoms over at Chiari Type One Malformation!

Kyle melts my heart when it rains, it pours being so brave about who differently he appears with his halo at Kyle's Chiari Malformation Battle

April celebrates being finally home after a lengthy battle in the hospital. Stop by Zipperheads: Living with Arnold Chiari Malformation and wish her well.

Maria tells us her experience with filtering friends in order to stay positive when dealing with chronic medical condition and difficult people on her blog at Arachnoid Cyst Support.

Misty gets one upped by those toppers and talks about anything you can do I can do better at her blog Day with Chiari.

Shalunya compares her condition to a Disney character in when it rains, it pours on her blog Life on Skype.

Bearly Burnt asks toughs questions in when it rains in pours over at


  1. I will get to my post! I'm reading others right now:)

    1. Glad we got ya in this month!!! We would have missed you terribly!

  2. Replies
    1. Thanks Scott! Chiarians are pretty awesome and we are proud to be able to spread the support and love.